lol76 wrote:Hi there, this must be truly awful to be living with...where are you at regards specialist help and exploratory tests? I really hope your GP is at least supporting you. Are you able to function with your pain? Please forgive my questioning I really do not intend to add to your suffering, but I care and think you deserve to be heard.
lol76 wrote:It sounds like you are going through an incredibly difficult time and are living in limbo...im not surprised your mental health is affected with all the physical symptoms you are experiencing. The pain clinic sounds like a positive thing to concentrate on and fingers crossed can get you more comfortable and then in time surely the specialists will finally get to the bottom of your diagnosis. I can understand why you feel like you are going round in circles...I dont want to patronise you and say everything will be okay but at least you now have the pain clinic on the horizon which is something for you to hang on to. You have every right to pester your GP as much as you need to...I know you probly feel like you are banging your head against a brick wall but they certainly get paid enough and have a duty of care to you so keep pestering...dont suffer in silence! Have you been given any inclin into what possibly may be your illness? If so are there any support groups for you? You are coping with alot...you have to believe a proper diagnosis and treatment will cone soon my friend...surely all these tests will fit together at some point and give you the answers you so desperately need.
lol76 wrote:I tjink thats terrible you are having to pay for the pain clinic! I dont know much about what goes on in these clinics but I really hope they are able to help you because you deserve a break from your pain. Let me know how it goes and good luck!
lol76 wrote:Wow after all this time you finally have a diagnosis. Honestly Ive never heard of it...so I had a quick google! It does sound a complicated condition but hopefully now you have an answer (even if its not what you expected) it might give you a direction. The 2 good things that strike me are the 8 week support group and the pain clinic. It might help to meet like minded sufferers who you can really relate to. You might learn coping techniques off others or even just develop supportive friendships. I know its easy for me and I really dont want to patronise you because you are the one in pain, I really wish you well and hope something helpful is coming your way...keep in touch, im always here if u wana chat or just vent!
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