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Why do mental health services always think Autistic people have a personality disorder?

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napayshni
Posts: 10
Joined: Sun May 06, 2018 11:01 pm

Why do mental health services always think Autistic people have a personality disorder?

Postby napayshni » Mon May 07, 2018 12:13 am

It really bothers me. I know most people don't believe that MMR vaccinations and Epilim don't cause Autistic Spectrum Disorder but when I was assessed by child mental health services and social services as a child, I was diagnosed with ASD and then because as I got older I somehow learned to become a little independent and showed signs of depression, I had another assessment done at a centre for social services at 16 and was diagnosed with Asperger's Syndrome but ever since I moved out of my mum's house at 22, psychiatrists and mental health services say I'm not Autistic I apparently have an Emotional Instability Personality Disorder instead because I have mood swings but I've watched YouTube videos of parents with Autistic children and they have mood swings too.

I did a survey online from an actual proper medical website and it says I'm Autistic too.

The symptoms I experience from Autism are:
Struggling to make friends
Having trouble understanding boundaries
Making inappropriate comments but not realising that they're inappropriate
Disliking loud noises such as emergency vehicle sirens, fireworks and smoke alarms
Like keeping certain objects in the same pile
Becoming easily distressed or angry when feeling misunderstood
Preferring the same routines
Becoming obsessed or repeating same behaviour (i.e. Checking my front door is locked 5 times)

I told a psychologist when I was living in London for a few years about my behaviour and symptoms and she still was convinced that I had a personality disorder and that I don't have Asperger's Syndrome despite my mother having letters from doctors and social services confirming that I do have Asperger's Syndrome.

I think it's disgusting and I was removed from shared accommodation with 24 support because people thought I was violent or aggressive because I would have mood swings but I've never ever hit anyone and then I got placed in this mental health supported accommodation but the staff were unqualified and unprofessional, they tried giving me other service users' medications and whenever they couldn't deal with me, they'd have the police lock me inside a cell for a day.

Heck, my CPN even tried to have placed in residential mental health institution.

I currently supposed to have a social worker as well as a CPN because of my learning disabilities and I need to be re-housed because my neighbour keeps bullying me but my local council won't let me have a social worker because they think I am not disabled enough and I get enough support even though I only see my current support workers once every other week and I only see my CPN once a month. I can't get a better decent accommodation because I'm not a high priority because I'm not disabled enough.

Not all disabilities are visible, Autism is a mental development disability that effects how a person responds to the world.
I feel victimised and discriminated by society.

Should I have to feel like I should wear a t-shirt that reads "I'm Autistic, I matter too" ?

c.j.
Posts: 81
Joined: Fri May 04, 2018 2:43 pm

Re: Why do mental health services always think Autistic people have a personality disorder?

Postby c.j. » Tue May 15, 2018 4:15 pm

What does your neighbour do?

betterinrecovery
Posts: 198
Joined: Mon Oct 30, 2017 10:07 pm

Re: Why do mental health services always think Autistic people have a personality disorder?

Postby betterinrecovery » Wed May 16, 2018 12:47 pm

Dear Napayshni,
I have just had a cursory read of your post.
I am quite shocked at the treatment that you have received, not just from your neighbour but from the services that are supposed to be protecting you.

May I suggest, that as a means of protecting yourself, that you make a copy of your post here, write a covering letter to you G.P. and then take them along to your surgery: make sure they are addressed to your GP by name. Hand them in.
In your covering letter ask for a letter of acknowledgement or receipt.
In this way you are clearly telling the Statutory services that you are not getting the help that you need.

The statutory services have a duty to look after you and keep you safe.
Permit me to read through your post again and then I might have some more ideas.

I want thank you though, as two of my relatives are on the autistic spectrum and reading your post has given me a bit of a better understanding of the condition, for example, I am less likely to move their things and I will be more patient if people need to check things.

Do your best to keep yourself safe.

B

napayshni
Posts: 10
Joined: Sun May 06, 2018 11:01 pm

Re: Why do mental health services always think Autistic people have a personality disorder?

Postby napayshni » Thu May 17, 2018 1:59 am

betterinrecovery wrote:Dear Napayshni,
I have just had a cursory read of your post.
I am quite shocked at the treatment that you have received, not just from your neighbour but from the services that are supposed to be protecting you.

May I suggest, that as a means of protecting yourself, that you make a copy of your post here, write a covering letter to you G.P. and then take them along to your surgery: make sure they are addressed to your GP by name. Hand them in.
In your covering letter ask for a letter of acknowledgement or receipt.
In this way you are clearly telling the Statutory services that you are not getting the help that you need.

The statutory services have a duty to look after you and keep you safe.
Permit me to read through your post again and then I might have some more ideas.

I want thank you though, as two of my relatives are on the autistic spectrum and reading your post has given me a bit of a better understanding of the condition, for example, I am less likely to move their things and I will be more patient if people need to check things.

Do your best to keep yourself safe.

B

napayshni
Posts: 10
Joined: Sun May 06, 2018 11:01 pm

Re: Why do mental health services always think Autistic people have a personality disorder?

Postby napayshni » Thu May 17, 2018 2:02 am

You're welcome, I think it's disgusting that Autistic people get treated like mental health patients.
There was a documentary on Channel4 by their Dispatches team, it was called "Under Lock and Key" and basically all these severely disabled people who have no history of mental illness were placed into St. Andrew's a residential mental health institution and most of the people were starved and heavily sedated and one of the people there actually died because he was given a medication that made him severely constipated that he complained about stomach pains and wouldn't eat and when the coroner examined his body during the post mortem, he had a stool that was hard as a rock and it killed him.

When I was placed into that 24 supported housing for mental health patients, there were residents that were carrying illegal drugs and weapons on them, I saw a dead body on the stairs and I begged the staff to call an ambulance immediately and they just got angry with me and shouted "If he's dead, why do I need to call an ambulance?", as far as I know, even if the patient is deceased, people still need to call an ambulance so that the ambulance service can give confirmation that the patient is definitely deceased or if there's still a possibility of reviving them and bringing them to hospital.
And most of the time I was there, the staff had my bank card so I couldn't control my finances, they stole food that my brother and sister-in-law bought me and then when I had not much money, I had to live off tins of baked beans or search the floor of the streets for bus tickets that had discounts on McDonald's meals and eventually I developed Type 2 Diabetes because of that.
When the staff weren't calling the police on me, they would beat me up until I urinated or defeated in shock due to the impact of the injuries and after 2 weeks of their beatings, I began having epileptic seizures or convulsions.
The only time I ever was happy whilst in their care was when I was admitted to hospital because I actually felt more safe in the hospital and I finally got the chance to get a decent meal.

napayshni
Posts: 10
Joined: Sun May 06, 2018 11:01 pm

Re: Why do mental health services always think Autistic people have a personality disorder?

Postby napayshni » Thu May 17, 2018 2:03 am

c.j. wrote:What does your neighbour do?


She calls me "spastic", "goofy", "tranny".
She purposely has sex against the wall where my bed is.
On Saturday nights she gets drunk with her friends and they all roll around the grass shouting how fat and ugly I am.
She dumps her rubbish into my back garden.
She swears at me and bangs against the wall telling me to turn my TV off yet she blasts her music off at like 3am.
She also starts banging and slamming her cupboard doors at 4am too.
Whenever I'm upset and have a bad day, I have one of my Autistic outbursts and she then calls the police and ambulance services on me saying I'm apparently trying to kill myself when I'm not and it's embarrassing because I'll be resting in bed in my underwear watching a film and the police won't let me get dress until I open the door and let them in and one time when it was a hot day, I was resting naked on my bed and I had to open the door naked.

That's what my neighbour does.

c.j.
Posts: 81
Joined: Fri May 04, 2018 2:43 pm

Re: Why do mental health services always think Autistic people have a personality disorder?

Postby c.j. » Thu May 17, 2018 12:05 pm

Do they live in a council house? Ie. maybe record them and tell the council.

betterinrecovery
Posts: 198
Joined: Mon Oct 30, 2017 10:07 pm

Re: Why do mental health services always think Autistic people have a personality disorder?

Postby betterinrecovery » Thu May 17, 2018 1:17 pm

Dear N,

The positive thing is that I can see from your posts that you are intelligent and you communicate well on paper.
Can I ask again that you print out your posts here. Let your g.p. have copies and also your social worker and mental health support worker also.

I think you need to keep careful records - this can be a bind - but on the other hand it will empower you to protect yourself both now and in the future. And you will feel more in control of your life and your environment if you keep records.
the pen is mightier than the sword - and is your evidence that you are appropriately asking for help.

Also, when support workers know you are keeping records they are more likely to treat you with respect and take what you say to them seriously.

the notes don't have to be copious - bullet points will do.

A mediator or advocate can help you raise your concerns about you neighbour with the relevant housing people. At one time Mind the mental health charity used to provide advocates - if they no longer do this they can point you in the right direction.
all this will take a bit of time, so be patient and persistent....that is the way to get what you need.
You have the right to live peacefully in your house.

I sympathise with you over the noisy, unreasonable behaviour of your neighbour , I have had some awful neighbours ...but some lovely, kind ones too, mind.
hang on in there and keep posting here on the forum.

Best wishes B

p.s. an advocate may also help with your visits to doctors and other specialists.

betterinrecovery
Posts: 198
Joined: Mon Oct 30, 2017 10:07 pm

Re: Why do mental health services always think Autistic people have a personality disorder?

Postby betterinrecovery » Thu May 17, 2018 1:20 pm

p.s. also take pictures of the refuse dumped in your garden.

I am thinking about other things that can be of help to you, as, I am sure other people who visit this forum are too.

very best wishes,
wishing you a peaceful day.
B

betterinrecovery
Posts: 198
Joined: Mon Oct 30, 2017 10:07 pm

Re: Why do mental health services always think Autistic people have a personality disorder?

Postby betterinrecovery » Fri May 18, 2018 2:04 pm

Dear N
just checking in to see how you are.
please try to keep a cool head as far as your neighbour is concerned. it is best not to approach them but to always communicate through a third party e.g. your MH support worker.
Also the police e,t,c, are there to support you, and protect you...
Try to communicate with them in a clear and calm way if at all possible.

should you want to 'brain storm' other ways of looking after yourself , I shall tryn to be of assistance.

Best Regards
B


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