Anyone remember Ooby

[bluebell123]

Missing Ooby, hope he's okay. Aisling.

[christabel]

Yes ooby is a big miss on the forum and the info and links he would put on for us were great.

He was planning a move. Hope he is doing ok too Aisling.

[bluebell123]

Yep, miss him, he was a big character. Aisling

[ooby]

I moved to Wiltshire to be near my youngest stepdaughter in September 2017. It was a good move as I had been struggling in Essex , with little support and being on autopilot when it came to the mental health services there. Basically I was struggling to maintain a 2 bedroom flat, my hygiene wasn't good, I was eating lots of takeaways.


My stepdaughter and her children have been a great support here. I'm getting help keeping my one bedroom flat clean. My stepdaughter comes to appointments with me, and takes me shopping.

I've had a care act assessment which I never had in Essex. That will be a yearly thing . Functioning wise I'm doing better thanks to the support I get. First psychiatrist appointment here in October 2018 the pdoc actually listened when I mentioned autism, something the mental health team in Essex glaringly failed to do. That resulted in a referral for an assessment in February of this year. After 3 assessments and doing the ADOS-2 I got the report saying I had the diagnosis of Asperger's syndrome on Monday. My stepdaughter was a great support throughout the whole process.


Had a scare a few weeks ago because of chest pains and the fact I was experiencing swollen legs and feet. Stepdaughter took me to the out of hours GP surgery and then I had to go to the bigger hospital for further tests . We were there for quite a long time while they did tests. All test results were ok and my risk for heart failure estimated as very low. It was diagnosed as being musculoskeletal pain. I had to go to a follow up appointment the next day. It's reckoned my feet and legs are due to being very sedentary. I'm trying to walk a bit more , but experience lower back pain- no doubt because I'm rather overweight.

[andthistoomustpass]

Hi Ooby!

I rarely post beyond my own diary now but it is good to see your name, I always learned a lot from your posts.

I'm glad you have better MH support, it is such a postcode lottery. You are the forth or fifth person I can think of from here with long term MH issues who has had a late Aspergers diagnosis. A poster called Milhaela used to tell everyone they likely had autusm, I always thought that was obsessional but it appears she was right in a number of cases.

Re the back pain. Yep, I get that when been overweight and sedentary. A few long walks will sort it out.

Good luck with everything!

ATTMP

[ooby]

Thanks, I remember Milhaela. Does she still post here?

I think re MH support having family on side can make a big difference . My youngest stepdaughter did what she could while I was in Essex ,but it was not easy being 3 hours or so away from me.

Of course quality of MH support from services shouldn't be dependent on having family/stepfamily in your corner. I'm thinking of those who have neither .

[caro]

Hello ooby

So pleased you got your autism diagnosis.

I was diagnosed in my 40s. After years of being misunderstood, bullied and ridiculed, i finally had an answer. I have many mental health problems, mostly due to my aspergers.
No psychiatrist spotted it, despite displaying obvious signs in my many consultations.

I hope your diagnosis, and better mental health care, help you to navigate life.
Hold your head high. Autism makes life difficult sometimes, but knowledge and acceptance is key xx

[ooby]

Hi Caro,
It seems to be an all too common occurrence , unfortunately , that signs of being on the spectrum are not spotted till years after they should have been .

I am 62 , and have been a service user since late 1973.

[deb1960]

Hi Ooby

I've just seen this thread and delighted to hear all the good that's come from your move. I think I.
remember you saying you believed the move was the right thing but you were uptight about it.

Good mental health services should be available everywhere.

Btw Wiltshire is a county I love. Here i am, in central Scotland. It's tipping down with rain and pretty cold!

Deb x

[ooby]

Yes-I was in full catastrophising mode about the move. My stepdaughter though insured everything went as smoothly as possible.