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See you post on another website

Posted: Sun Dec 03, 2017 2:12 am
by Cyprus
I have just seen my post on a website found it really disturbing assist realise that would happen I give details on here as I feel safe ow my trust is gone why

Re: See you post on another website

Posted: Sun Dec 03, 2017 5:52 am
by andthistoomustpass
Hi

That's odd and a little worrying. Which site? Was it posted by a member there who had copy pasted your post or did it look like some sort of official link with SANE?

Re: See you post on another website

Posted: Sun Dec 03, 2017 10:20 am
by Cyprus
It was a post I wrote this week

Re: See you post on another website

Posted: Sun Dec 03, 2017 10:20 am
by Cyprus
And I didn’t repost it

Re: See you post on another website

Posted: Sun Dec 03, 2017 10:23 am
by Cyprus
Treato

Re: See you post on another website

Posted: Sun Dec 03, 2017 10:48 am
by andthistoomustpass
Hi Cyprus

I took a look at their site and it looks like they have an automated bot which trawls health related forums looking for key words and pinches posts to promote their invasive business. I doubt very much that they have permission for this from SANE.

You could try complaining to SANE supportforum@sane.org.uk giving them a link to the post Treato has taken of yours. They may be able to stop this company from trawling this site technically or be able to contact them and tell them to stop legally. Tell SANE you want a response. I have had good responses from this email address before now.

Taken from Treato website:
"Treato automatically collects, indexes and analyzes the massive amount of content patients and caregivers generate online" "The information reflected here is dependent upon the correct functioning of our algorithm"

Re: See you post on another website

Posted: Sun Dec 03, 2017 12:34 pm
by amaya
That's horrifying. What a bunch of scumbags to use personal information without asking.

I hope Sane can do something to protect what we post as I wouldn't want this to happen to me or anyone else.

*hugs* Cyprus

Re: See you post on another website

Posted: Sun Dec 03, 2017 1:25 pm
by Isap
I had a look at that Treaty website and its creepy
Based in Israel

Re: See you post on another website

Posted: Mon Dec 04, 2017 2:40 am
by Cyprus
It’s just personal and I know this is open for us to talk but always felt safe this is making me feel uncomfortable xx

Re: See you post on another website

Posted: Mon Dec 04, 2017 7:17 am
by andthistoomustpass
Hi Cyprus

It would make me uncomfortable too. The other site seems to exist to sell information to drug companies. Did the post they stole name a drug? If the answer is yes then so long as we are careful about when we name specific medications or drug companies they should have no interest is stealing our posts.